Lisa is going to be updating their story here in the next few days, but she asked if I could share my recent blog post chronicling how it began for them in the meantime.
Somewhere around 18 weeks ago, I stood on my back deck crying on the phone with one of my dearest friends as we celebrated and shared together in the shock and wonder that a new life was growing inside her. I remember us both agreeing that this sweet surprise was obviously God’s plan, and that He knew every one of her days and her purpose before we even knew of her existence.
And today, that same dear friend and I cried together on the phone repeating those words… that God had planned this little girl’s life, that her body was crafted by Him, without mistake, and that each of her days were planned and numbered before any came to be.
3 weeks ago Lisa Colley texted me following her 20 week ultrasound to tell me that she had fallen madly in love with her baby GIRL! The very next day the midwife contacted her to say they had seen something during that ultrasound, an abnormality with the baby’s heart, and could she please schedule a fetal echo-cardiogram. She did, and we began praying. One special friend even committed to fast a day each week in prayer for this new life.
Yesterday morning while I sat in the hospital waiting for my own little girl who was in surgery (for tonsils and adenoids), I received a text saying they had finished the ultrasound and were waiting for the results, but that the abnormality (a narrow valve coming off a ventricle) was definitely apparent- even to her and Jason (her husband). They were currently waiting to meet with the doctor to hear what the results meant.
It’s weird, as pessimistic as we all can be sometimes, and how easy it is to google the worst case scenario, you still somehow expect to never hear it. The worst case scenario is always for someone else. I know I expected to hear that upon closer inspection- the baby’s heart looked just fine! Or perhaps that they’d need to closely watch to make sure she would outgrow it, etc etc. But even though this is still kind of beyond comprehension, they heard instead, “let me show you a picture of a normal heart, and now let me show you what your little girl’s heart looks like…”
Critical Aortic Stenois.
In Lisa’s words,
“Our baby has Critical Aortic Stenois which means
that the valve coming off her left ventricle is way too narrow, and at birth
would not be able to allow enough oxygen-rich blood to pass through to
sustain her life.
So she will need some serious medical intervention, either now while she is
still in the womb, or immediately after she is born. There is also a
possibility her heart could fail her now or at anytime, so as you can
imagine Jason and I are feeling like we have been hit by a Mac truck.”
And yet despite this, Lisa and Jason are already looking for and sharing evidences of God’s grace. Acceptance of God’s control and His plan. A supernatural peace in knowing that all things are filtered through God’s hand and the comfort of His presence. I’m
kind of totally in awe. So encouraged by them. And so thankful for them, their testimony and faith and God’s great grace.
Tomorrow morning at 8am they will meet with a surgeon in Toronto who will hopefully find Lisa and their baby girl to be a good candidate for surgery while she is still in the womb. If so, this surgery could be done as early as friday or saturday. The surgery is experimental and fairly new in Toronto, but holds the best chances for their daughter’s heart to grow healthy instead of to continue to damage itself further each day.
I’ll include an email below that explains a bit better (my brain is currently struggling to function after a night of little sleep with my little tonsillectomy patient), but I wanted to ask of anyone who reads this- to please please pray. And also, if you know Lisa and Jay and have their email address, please let them know you are praying. And if you want their address, email me and I will forward it to you. Let’s cover the Colley family over and over with our love and support and prayers.
Here’s the email sent out after one of our pastors met with them…
Just wanted to give you an update on Jason and Lisa Colley. I just got back from a pastoral visit at their house and its been a rough day for them – asking that you’d pray for them, and that we get them into our prayer channels. What a joy to pray with them today.
They were told today by the Pediatric Specialist at the Hospital that their baby girl (due date December 15) has pretty significant heart problems in the left ventricle. I won’t go into the details they were telling me about whats not working, but suffice it to say that its as serious as serious gets in the world of cardiac issues. What they are dealing with as of today from the medical community is that the baby could die at any time now up until the estimated delivery date; and that even if she makes it, she would be rushed into urgent heart surgery right away for a procedure that won’t actually fix it…more of a temporary intervention that could prolong the years and hopefully set her up for a heart transplant mid life. Its really quite overwhelming news to get. They have to make some decisions about seeing a specialist in Toronto who is working on an experimental procedure that would be done in the womb soon, but only has a 25% success rate.
Praise God that we have hope in Jesus Christ who has a sovereign plan for this girl, a plan that won’t be thwarted for any reason; a High Priest (Hebrews 4:14ff) who has called us to pray boldly and come to his Throne for mercy and grace in our time of need and who has called us to pray persistently (Luke 18:off). I am reminded of the fact that as parents we are stewards of these children for the Lord’s glory. So, just wanted you all aware so we can be an encouragement to them and be praying alongside them. Id encourage any of you to reach out to them over the next few weeks as the waiting gets hard.
For you created my inmost being;
you knit me together in my mother’s womb.
I praise you because I am fearfully and wonderfully made;
your works are wonderful, I know that full well.
My frame was not hidden from you
when I was made in the secret place.
When I was woven together in the depths of the earth,
your eyes saw my unformed body.
All the days ordained for me were written
in your book before one of them came to be.