An update…

So things are going pretty good here… sweet little Ava is mostly comfortable and has been looked after by some of the nicest nurses I’ve ever met (and I’ve met alot of nice nurses in my time).   She isn’t getting fed right now because they don’t want anything in her stomach for surgery – plus digestion would draw too much blood flow, so she is being kept comfortable by a soother and some sugar orally when she is fussy.   The only draw-back is that once in a while she forgets to breath and turns blue and her blood-saturation levels drop – it’s unfortunately a side-effect of her medication.   It’s also too bad it happened twice when I was holding her!  I think she just got too relaxed because it was mommy holding her and just forgot that breathing is essential to life. 🙂  Thankfully the surgery will fix that.

And tomorrow is the big day.  She is scheduled to have surgery in the morning – the big one – the Norwood procedure which is typically a 6 hour surgery on which she will be on the heart and lung machine – our sweet little Birdy.  But we are so thankful that the cardiologists were able to make this decision – because it looked for a while like we would have some input deciding if we wanted her to have the Norwood of a different Hybrid procedure, and we just don’t know enough to have any say in something as important as that.

But can I just say how incredibly blessed we are?   From having a condo to stay at in Toronto,  to our amazing friends and family who are supporting us and caring for our children and looking after every detail for us.  To having a church come together and pray for us like you saw in that picture Christa posted below…  God is showing us just how much He cares for us,  we just keep tearing up every time we think about it.

And it’s not easy being here – but today we checked into the Ronald MacDonald House and it’s amazing… and it’s just one more thing to be thankful for.

So thank-you all for your prayers and comments and encouragement,  we won’t forget it.

And remember – surgery tomorrow morning!


You are loved


By Christa

Philippians 4:6-7 do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus