Alot to be thankful for…

This post could get really  long, because I’m really tired and have alot on my heart and my mind,  but I will try to condense it so it’s not rambling and crazy.

The point I want to make though, is that through this difficult journey, we have so much to be thankful for!  Every day it seems Jason and I keep coming back to how thankful we are, so I wanted to share some of those things.

We are thankful for… Incredible Nurses.    Every one we have met has been so supportive and wonderful and caring.   And so much so that we don’t feel guilty leaving Ava in their care and coming to the Ronald MacDonald House to eat and sleep and unwind.  And they take such good care of her!  And she can be alot of work, but I’ve never heard anyone complain.

The Ronald MacDonald House – it was just a name to me before… didn’t mean anything.  But even now as I’m here thinking about it, it makes me tear up.  It’s been incredible.  The place itself is beautiful, the rooms are spacious and lovely.  People come in and make dinners for everyone here about 3 times a week – different companies and organizations who donate the time and the food and it’s just wonderful.   There is laundry here, all free,  a massive beautiful kitchen, games rooms, an office room (which I’m in now) and much more.   And very best of all, our hosptial social worker yesterday realized how much we missed our kids and talked to the Ronald MacDonald House and so today we moved into a 2 bedroom suite here, complete with a full kitchen so that we can bring our kids down… all for 15 dollars a day.    This place makes life bearable, honestly, it’s just wonderful.

Our friends and church family and blog readers… what can I say.  The support and encouragement we receive daily means so much to us.  I know I don’t get a chance to email everyone back or respond to comments, but please keep them coming!    We are far away, but feel so close because people haven’t stopped letting us know that they care about us in all sorts of ways and we are so humbled and blessed, it’s over-whelming in a good way.

Our families…  from taking care of our children (that includes you Oma Rachel!) and making the long trip down to be with us and visit us, and supporting us through texts and meeting our physical needs…. we are so incredible blessed to be part of two wonderful families.

And God.  He is the giver of life,  He gave us our precious gift that is Ava and He alone is giving us the strength to get through each day.    Having our faith in God and being able to trust Him every step of the way has given us a peace I didn’t know one could have in this sort of circumstance.

Our Ava, she is such a little fighter!   What an incredible kid, and I have a feeling she is going to be very feisty so look out!

And as an update on her, she is looking great, almost all the swelling is gone today.  Although when the dr’s were there this afternoon it slipped out that she was actually very sick after her surgery and not in good shape at all.  I’m glad we were spared that information at the time.  But because of that, they had to put her on lots of meds and steroids even in the operating room and that is why it’s taken her so long to get rid of the extra fluid… whew… at least now she is stable.

Today she didn’t look comfortable and they had to up her morphine because of that, but we are really hoping that tomorrow is the day her chest gets closed, or at least they start to try to close her chest.  So please pray for that.  Once that happens, she can start to lose her other lines and tubes and the ventilator and maybe soon I’ll actually be able to hold my baby again… I just want to hold my baby.

But I’m just thankful that she is still with us and getting better, slowly but surely and that is definitely another thing to be thankful for!