Moving on up!

It was a big day yesterday,  Ava moved out of the Cardiac critical care unit and up to the fourth floor!  It feels so good as it’s a step in the right direction for Ava, going to the 4th floor means we are one step closer to going home.   Here she is, all bundled up like a pea in a pod, ready for her big move….

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The fourth floor is the cardiac floor, and so it’s all kids recovering from heart issues, or kids who are waiting for heart transplants.  It’s definitely more relaxed than the CCU and it’s so nice that we don’t have to call to the front desk and get permission to visit Ava like we had to do when she was in the CCU, now we can just waltz in and visit her anytime.

So in her new digs, there are four children and 2 nurses, it’s called a ‘step-down’ room.  And these nurses are still busy, but it’s a different busy than the CCU, it’s more feeding and changing diapers and monitoring vital signs busy as these kids are mostly awake and need attention like all kids too, so here it seems that they really appreciate when a parent is around and can help with their child.

And Ava is doing so well.  She still has her times where she breathes’ really fast, but her heart rate is good and for the most part her oxygen saturation levels are pretty good. They are still monitoring them and for her a good sat is around 80, but sometimes she is dropping into the 60’s or over-circulating and going into the high 90’s.    This is might be normal for her, but it would be better for her to stay around 80, so we’ll see what they say around that.  Last night when I was holding her she was dropping down, but when I put her back in her bed, she had a little cough and her sats went back up, silly monkey!   But it was nice that she didn’t have to go on oxygen, which is what they do for her when her sats get too low.

So today we will hopefully find out what her goals are,  and what we need to accomplish before we can take Ava home.  I’m starting to get excited about that, so please keep praying that we would keep moving forward.

We also have some more diabetes training for Sarah today – Sarah our five-year old who now checks her own blood sugar!  I’m not kidding!  She pokes her finger and knows how to use her monitor.  She is just something else.

The plan today was to also attend an information session to see about putting the kids in the school here at the Ronald MacDonald House next week, but both Erik and Sarah have sore throats this morning.  I hope it’s just because it’s insanely dry here, and not because they are getting sick.    God has been so good to us so far with our heath, and so I hope that we can avoid bad colds or even strep-throat as this could even jeopardize Ava,  so please pray for this as well.

Well it’s another day here and I gotta get going.   We had a fabulous visit by some of our friends and neighbors yesterday. Such a boost for our morale!   And it just makes me want to go home and see everyone again…  Lord willing it will be soon.  But for now, just grateful that Ava is moving up in the world!

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7 thoughts on “Moving on up!

  1. Wow, great news! Little Ava looks so sweet and tiny all wrapped up like that 🙂 And Sarah; what a little trooper learning how to check her own blood sugar- I think I’d have a heard time with that!
    We would love to talk soon, and maybe even come for a visit. We love and miss you guys! Happy New Year!

  2. Wonderful update Lisa!! Celebrating her 1 month birthday tomorrow too! Sarah is incredible. What a wonderful family.
    My cousin had worked on the 4th floor at sick kids and she said there are wonderful teams up there.

  3. Praising God for the daily miracles you are sharing with us!!!

    So excited to hear you are holding her! And we just LOVE the latest picture of her all bundled up. So cute!!!

  4. Happy “graduation” Ava!!! She looks so sweet in her little hat you made for her. All the dreams and hopes and prayers while preparing for her arrival… and now she is here- more wonderful and precious than we could have even imagined! Will keep praying for her breathing to even out.

  5. What great news Lisa! We have been following your blog anxiously & celebrate with you all Ava’s move! & Sarah’s ‘new normal’! Sending you all huge hugs & lots of love! Love, Marlene & Carm

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