She’s a month old!

Ava Samantha Grace is now one month old, congratulations sweetheart!

And it’s been a super-duper busy day, that’s for sure. Remember how I said that they moved us to the 4th floor into the step-down room? Well after just a single night in that room – we moved again – this time to our own room, crazy!

So we found ourselves installed in a room that has a bathroom and a bed (if you can call it that) for me, and now I am taking on a huge amount of Ava’s care. I change all her diapers, I comfort her when she cries and I’m even learning how to feed her through her NG tube… did you know that every time you feed someone through a nasal gastric tube you have to insert air into their belly and listen with a stethoscope for a ‘pop’ to make sure it’s the in right place? I was surprised. But I was able to give her some of her meds today through her tube. It’s a little daunting, but baby-steps is how we travel these days.

And yes, I’m a little over-whelmed and stressed. We had a good routine down and now everything has changed again. With me staying at the hospital full-time Jason is now doing even more on his own with the other kids (and doing an amazing job by the way). Not that I was doing much before to help him, but at least I was still sleeping at the Ronald MacDonald House, and spending time with kids. Now that I’ve basically moved into the hosptial I’ll only be visiting them there, I’m sad.

But Ava is doing good from my perspective, she did have to go on another blood pressure med and apparently one of her heart valve’s is leaking but its all stuff we take in stride.

Oh, and Monday the Occupational therapist will come and test Ava to see if she can swallow without choking… they are a little concerned because her vocal cords seem to be paralyzed (this can happen in surgery) and that can make swallowing tricky, that combined with her quick breathing might make it a huge feat for her, but if she can swallow, we can start to try oral feeding, so please please pray!

And talking about prayer – I was getting pretty worked up tonight and upset but Jason prayed for me and reminded me once again to have faith. In God. Knowing that He is allowing this and has a plan.

So even now -one month in and trying to adjust to change and not knowing when we will be coming home and I am feeling like maybe I can’t take anymore -I’m so glad that God has placed people in my life to remind me and encourage me that He will never forsake me. And I know in my heart its true.

9 thoughts on “She’s a month old!

  1. I can’t get over the fact that on the 26th you held for the first time in almost three weeks – and then 10 days later you are “in charge” of her daily care. That is SO incredible! Only God could do something as incredible as that!

  2. Oh Lisa, I am so encouraged by your blog to see you and Jason trusting in The Lord through all this! This truly brings glory to God!
    Psalm 147:11. The Lord takes pleasure in those who fear him, in those who hope in his steadfast love.
    Many people are praying for you – and our Sunday morning prayer group will be calling out to The Lord on your behalf tomorrow morning. We will also pray that Ava will be able to swallow, and for Sarah as well.
    Looking forward to having you all home and meeting little Ava!
    Love Cindy

  3. Praying that this will be a wonderful and special time for you and Ava, she gets to have mommy close at night time … joy! Love you guys, continuing to hold you all up in prayer. I am so thrilled to hear that Sarah is so capable of doing her sugar tests, what a tough cookie! Praise the Lord!

    Much Love, Leanne

  4. Awesome. So thankful to God for ” All You’ve done and yet to do.” So great that she is ” graduated ” to her own room with you. Praying that you will experience God’s peace…that He will continue to speak to your heart about His presence and love for all of you and that you can lean into His heart for strength. Like Jacob when he struggled with the Angel of the Lord..” Surely the LORD was in this place and I was not aware of it. ” Gen 28: 16

  5. Happy Birthday Ava! I’m sooo glad I got to meet her (what a beauty) and see where all of you are staying. I think it helps me to pray for you better. And reading your blog helps too!! Keep casting your cares on the Lord and He will keep sustaining you!
    Love ya,

  6. Such great news!! What a peach she is! (Now is the time to push for breastfeeding as it is less stressful and easier for the baby to control.)


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