Diabetes Clinic

Today, Jason and I and Sarah went to the hospital for a diabetes clinic visit.  I was just at the hospital yesterday with Ava to see our Nurse practioner in the Cardiology clinic,  it’s like our new home, fun!  🙂  Oh and Ava is doing well and on the mend thankfully.   She started smiling and talking again yesterday,  so it’s such a relief to see her feeling better.

Now London isn’t quite big enough to have our very own hospital completely dedicated to children – but we do have different children’s sections in the hospital and everyone that we have met so far that works with kids has been wonderful – and that extends to our diabetes team.

We met our diabetes nurse and talked about how Sarah’s blood glucose numbers have been.  We met the dietician to talk about how our carb counting and meal planning have been going.  We quickly met Sarah’s endocrinologist – who is also going to be Ava’s endocrinologist.   And we met with our diabetes social worker.  His job to is to make sure that we are coping well, and that Sarah is doing well and to see if we need any extra help in any area.

So it was quite a long appointment, but very informative.   And I’m happy to say that I now am more comfortable with injecting glucagon – which is what we would need to give Sarah if her sugar gets so low that she wouldn’t even be able to take juice or any kind of sugar orally.   It’s a true needle – which is different then the pen needles we use to give her insulin, so it wouldn’t be as easy, but you gotta do what you gotta do!

Actually, before we left the hospital with Ava last week they talked about maybe switching her blood-thinner from baby asprin  to an daily injection in her leg… no!   But thankfully they decided that she was doing well and since she hasn’t had any problems with her shunt, they  left her on her baby asprin.    I’m so thankful.

I will say it again, there is so much to learn with diabetes, that I’m glad they set it up so that we can learn it slowly.  And Sarah did awesome and got blood work with not even a tear, she is a trooper!

These two girls…

SarahAva

They certianly love each other.  And maybe God gave Sarah diabetes so she would have more compassion on Ava and what she will have to go through,  only He knows.    But I’m just glad that we have these two girls, diabetes and heart conditions and all.

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Please come

Next Sunday – May 5th –  Lord willing – we are dedicating Ava at church and you are all invited!  I mean it!  Even if you don’t normally attend church, if you have been following our story,  you live in our area and are free next Sunday, we want you there to see Ava and share this time with us as we dedicate this little Birdy….

avadressed

When we dedicate a baby at our church it means that we are publicly acknowledging that our child is a gift from God, and we ask for help in our endeavour to raise that child according to God’s word – the Bible.    And because we have so much to be thankful for regarding Ava, Jason and I have been given an opportunity to say a few words about our journey and I know I’m going to cry buckets, and I would mean so much if you could join us.

Please see this link – Harvest Bible Chapel – for service times and information – and you can always email me at 6andahalfhearts@gmail.com for more information.  And you can definitely bring your kids as there are programs running for them during both services up to grade 5.  We will be sharing our story at both services on Sunday so you can choose either one.

We are so grateful to God for His goodness and since Ava doesn’t normally go to church because of risk of infection, it will be so nice to have everyone together.       If something unexpected comes up – like another hospitalization – we will have to change the date, but we will post any information regarding that here on our blog.

So don’t be shy, please please come, we want you there.

Home again

So we got released yesterday and brought Ava home from the hospital, hurrah!   It’s so good to be home, although Ava definitely isn’t 100%.   Her nose is still stuffy and it’s only today that she has started to smile again and look some-what happy.    Last night she was tired and lethargic which had me a little worried, so to reassure myself I paged the cardiologist on-call in London to just check to see if Ava’s behaviour was normal.  Thankfully the Cardiologist on call was the one who had seen Ava that morning and she felt that if Ava’s vital signs were good then I shouldn’t worry as it made sense for Ava to be feeling tired as she is still tying to kick this bug.

But praise God – that He kept Ava and held her and that she wasn’t worse than she was.  I had a moment of panic when I brought her in to emerg in London Tuesday night – because while she was being triaged – the nurse asked me to come with her somewhere more private – and she brought us into the trauma room.   The room then suddenly filled with people and dr’s and they started her on oxygen and inserted an IV and I was a little surprised, and then worried because I knew that she wasn’t right – but obviously didn’t see how bad she really was.   I guess the fact that her little half of heart was beating almost 200 beats a minute clued them in that something was very wrong.

I’m so thankful once again that we live close to a good hospital filled with competent people.  And everyone in the emerg at London takes Ava very seriously and I’m glad.   And again,  influenza could have taken Ava’s life,  but God spared her and I am so thankful for everyone’s prayers, so thankful that she is on the mend and is back at home with her family.

But now in the aftermath of getting a positive influenza diagnosis,   Ava’s catheterization is once again postponed and it looks like it won’t happen until the end of May.   Just to recap – the catheterization is a procedure where they will insert a thin catheter into one of Ava’s veins, go into her heart and test the pressures of her heart and lungs to see if she is ready for her next surgery – the Glenn.   And Ava desperately needs her Glenn surgery so that her heart won’t have to work so hard.    If everything goes right, after the surgery she won’t be as medically fragile and hopefully won’t require as much care… but that part is neither here nor there.  She is our child and we will give her whatever care she needs for however long.

And I was blessed to come home to a tidy house with ALL my laundry done thanks to my wonderful mother-in-law who took care of Sophia and lended a hand.   We couldn’t manage it alone with everything that we are going through and we are blessed with all our friends and family who keep helping us.    I keep saying that it’s like we are trying to juggle it all, but no matter how hard we try, we keep dropping balls…   but that’s our life right now.   God is certainly giving us a lot to handle, and as Jason always says, it’s amazing what you actually can handle. 🙂

So we are go grateful to be home and together again on such a beautiful day… Praise God!

So Ava has…

Ava’s nasal swab came back and she has influenza.   Influenza, at the end of April, so annoying!    But it makes sense, because Sarah had classic influenza symptoms last week with her three days of fever and runny nose and cough.     So one week it plays havoc with Sarah’s sugars and the next week lands Ava in hospital.  I am not a friend of influenza.

They are starting Ava on Tamiflu tonight – the anti-viral medication – and the dr said today that they won’t be sending us home tomorrow so it looks like we will be here until Friday –  hopefully not longer.

It does mean that we will have to reschedule Ava’s GI appointment that she had at Sick Kids this Friday.  It was her first appointment to start the process on hopefully getting Ava a Gastrostomy tube (G-tube) to replace her current nasal gastic feeding tube.    But I guess it will have to wait.

We will also have to see if we can keep Ava’s new catheterization date of May 13 , I will keep you posted.

So please keep praying for our sick little Birdy and our family as we are split up for a few days.   Thankfully by God’s grace we’ll get through this little bump in the road just fine and we are just really happy to know what Ava has so can deal with it and keep moving on.

Admitted

Just wanted to do a quick post to let you know that Ava was admitted to hospital here in London once again last night.  We had a nice little visit with our friends in the ER Monday night as Ava seems to be struggling with her fluid balance and had started to cough more like she had caught another bug.  Our cardiologist saw her and at that point gave me the option of staying in case she got worse, but I opted for the taking her home and watching her like a hawk.  But then yesterday at dinner time I wasn’t happy about her work of breathing and rapid heart-rate.  Together they made her tremble and it was rather disconcerting.   My neighbour Sheila and Jason both agreed she didn’t look right – so after talking with Toronto again, well… here we are.

And it looks like we will be here another 24 hours at least until her nasal swab comes back and tells us what bug this is – probably the same one that Sarah had last week.  I always do try to teach my kids to share!!   But Ava dealing with a virus and a healthy child dealing with a virus are clearly two different ball games.

My sweet sick little Birdy, I feel so bad for her because everything seems to hurt her and she is so ultra-sensitive. I console myself by remembering she won’t remember any of this.

And once again, even in this little blip, there is a lot to be thankful for.   For starters, my friend Rachel who gave up two evenings to sit with Ava and I in the ER – I so so appreciated that.   And I’m thankful for the amazing dr’s and nurses who take Ava very seriously and provide her with such amazing care.   And I’m thankful that I can abandon Jason at dinner-time with 4 hungry children to feed two times in a row and it’s absolutely no problem.  And God is so good.   Sometimes this journey is over-whelming and I just want to sit and have a good cry because I don’t know what the future holds.  But then I remember that I don’t have to know – God has that part all figured out already.  I just have to trust him – every day – with everything –  and He gladly grants me His peace and grace in exchange for my fears.    And I’m accepting both grace and peace today.  Just like my favourite verse says…

Phil 4:6&7 Do not be anxious about anything, but in everything with prayer and supplication with thanksgiving let your requests be made known to God.  And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.

Even when your baby is sick and admitted.

Amen

Honeymoon

What a beautiful day today!  Too bad it deteriorated into a thunderstorm tonight.  And apparently in our good old Ontario fashion, we are going to be experiencing high humidy tomorrow…  already, although it’s only April.  But it’s Ok, as long it’s not snow.

And I had to write tonight to say that Sarah is doing good.  Her blood sugar did spike last night along with her fever, but at that point we didn’t know if she had any ketones in her urine (because she was fast asleep) so we held off on giving her extra insulin and then waited until midnight to check her again.  Thankfully by then her blood glucose levels did come down a bit and we were able to check for ketones and didn’t find any, thankfully.     And then when I checked her blood sugar again at 4:00 am (was up anyway feeding Ava and pumping), she was below 10, where she is supposed to be, praise God.   It really is such a blessing that she is still in her honeymoon period where she is still making a bit of insulin for herself, and she does tend to self regulate at night.  We don’t know how long this phase will last – but we truly believe that God is arranging it so we don’t have as much stress and worry with her right now.   It’s just so weird dealing with diabetes and a bad cold – I can’t even give my child lemon tea with honey in it, which is frustrating, but hopefully before Christmas Sarah will be on the insulin pump and that will be such a game changer.   We are looking forward to it.

And it was fun to hang out with Sarah today and the sunshine today did alot to lift my spirits.   Sophia is staying for a few days with my mom, which is wonderful because Sophia likes to engage me all day long and then gets frusterated when I’m too busy to play with her.  Recently she has said a few times that she would like to send Ava away.  Oh dear.  I know she loves her but I can understand that for a three year old it would be fruaterating when mommy seems to spend all her time on the baby.   So I really appreciate it when mom and others that take Sophia off my hands occassionally.  (Thanks Dianne and Rachel!) And even though I’m sure  Sophia talks their ears off, she just soaks up the attention and though I’m sad it can’t be me giving it to her all the time, I know she benefits.

And now I think poor Ava may have picked up Sarah’s cold!   She seemed a  bit more snuffly again this morning and she might be coughing a bit more too .   I record a lot of information about her during the day – like her weight and her oxygen saturation levels, but I still don’t record how many times she coughs. 🙂   At least this week I don’t feel I need to worry as much about her heart, and know now what a cold can do to her, so hopefully we can avoid any more trips to the ER.   But please keep praying for her, we just don’ t want her to get any  sicker.

So tonight we are thankful that Ava is doing OK – that Sarah is manageable and that honeymoon periods for diabetics exist.  God is good.

Delay and Sick Days

So I heard from Toronto yesterday and they are almost 100% sure that Ava’s catheterization scheduled for next week has been postponed due to her cough.  Boo hoo.   So even though it’s not officially cancelled yet, it stands to reason they don’t want her sick and coughing if they need to check the pressures in her lungs.  And I certainly don’t want to have to do this test twice.

The news is a huge bummer, but I’m glad they had warned me last week when we were in emerg that it might happen.   So we keep waiting!  It looks like we will still be going to Toronto next week for Ava’s sedated echo which was scheduled as part of her pre-cath work-over.   Please pray for that because last time she had a sedated echo, she went all gray and limp when she was coming out of sedation – and we don’t want that to happen again.  Actually,  I’m starting to think of the catheterization itself with a little bit of hesitation.   It is a 2-3 hour procedure done under general anesthetic and there is always risk with that.   I hadn’t really thought too much about it before, but now that it’s been delayed  I’m going to have lots of time to think.   And it’s a shame, it would have been nice to have it done and over with before I realized I should be worrying. 🙂

And then to top it all off,   Sarah came down with a fever tonight – and that’s not good for her sake or Ava’s.   She is constantly playing with Ava and holding her, and we can’t afford for Ava to get sick again.   And for herself , when diabetics get sick their blood glucose levels go all wonky.   So tonight we need to check Sarah’s blood sugars every four hours to make sure she’s OK.     Illness apparently makes your demand for insulin go up – so that can affect a diabetic by making their blood glucose levels get too high and they can develope diabetic ketoacidosis (DKA) – which is very very very bad.    And here in London we don’t have access to a Diabetes doctor 24/7  like we did when we were in Toronto, but at least here we have 24/7 access to our friend Dave… at least that’s what he says.  Thanks for your help tonight Dave!

So we keep trudging along here,  through the delays, and through the Sick Days.  Please keep us in your prayers!

10 things I’ve learned about diabetes

It makes me kinda laugh to think that if we didn’t have Ava – whose troubles have really taken over this blog – I probably would be blogging every day about Sarah and her diabetes!    And I’ve been working on this post for a while, because I really want to share with everyone some info about Type 1 diabetes.

We are definitely still in the learning phase here on how to live and care for Sarah,  and I will say  again that Diabetes is a HUGE learning curve.    And I can’t say enough how grateful I am to Jason for taking on the burden of care for Sarah after her diagnosis.    Sarah was diagnosed December 20th and I moved into the hospital with Ava January 2nd, and so he had to  take it on and fly solo, and he has and still is doing an amazing job.

And even though diabetes is manageable and diabetics can lead a normal life,  Jason and I will both tell you that even now,  Sarah’s diabetes diagnosis really hurts.    It’s really hard as a parent to have a perfectly healthy normal child and then be told that she will be dealing with something for the rest of her life… it won’t ever go away.   And it has changed our life.  Now Sarah has to check her blood glucose level 4 times a day.  Get a needle before breakfast and another before dinner and snacks have to be regulated by time and the amount of carbs.  It’s a bit time-consuming and it does make us long for our pre-diabetes days, but on the other hand, we can be grateful that diabetes is something that can be controlled and that Sarah isn’t sick.

And the hospitals do make sure that you as the parent receive a ton of training.  It’s just that Jason has done most of the training and I haven’t, and I need to go and do it.  When I have the time of course.

But I’ve learned some basic things so far, and I’m going to share those things with you (whether you want to or not :))    So here goes…

1.   First off…  type 1 diabetes and type 2 diabetes are two completely different diseases and as one of our diabetes nurses said,  really should have two different names.

2.   As you probably already know, Type 2 diabetes more often happens later in life and is a disease where your pancreas either doesn’t produce enough insulin, or your body is not effectively using the insulin it has.   It is often managed with diet and exercise,  or pills to slap your pancreas into producing more insulin.    If these measures don’t bring down your blood glucose levels, you may have to take insulin.

3. Type 1 diabetes (which is what Sarah has) results from your body attacking and destroying your beta cells which are formed in the pancreas and produce insulin.  So it’s really an autoimmune disease as your body has for some reason decided that its own beta cells are the enemy and must be destroyed.   And unfortunately it’s  still a mystery as to why this happens.

4.  Sarah didn’t do anything that caused her to get diabetes.   It wasn’t her diet or anything like that.  She may have had some genetic component that made her more susceptible, but then they really think there is some-sort of unknown environmental factor that triggers type 1.    One of the endocrinologist at Sick Kids said that they often see it appear in children after period’s of stress, and Sarah was stressed back in November that we were going to be leaving to go to Toronto to have Ava, but did that cause it?   Probably not.

5.  Because type 1 diabetics are completely insulin dependant, they don’t manage their disease with their diet.  They can still eat everything, and should eat a large variety of foods just like everyone else.

6.  Type 1 Diabetics count carbohydrates in their food – not sugars.   Here is Wikipedia’s definition of a carb.. “the term carbohydrate often means any food that is particularly rich in the complex carbohydrate starch (such as cerealsbread, and pasta) or simple carbohydrates, such as sugar (found in candyjams, and desserts).”   Carbohydrates are broken down in your body into glucose – which is a readily available source of energy for your body’s cells.   But to get at the glucose, your body needs insulin, a hormone produced by your body.   So when a diabetic looks at packaged food, they don’t look at the sugar content, they look at the carbohydrate content, as it’s the carbs that will turn into glucose in their blood stream and affect their blood sugar levels.    (Don’t want to get too technical, but we can actually subtract fiber grams from the total carbs.  So for instance, 1/2 cup of blackberries has 7 carbs, but 4 grams of fiber.  So we subtract the fiber from the carbs, now that 1/2 cup blackberries only counts as 3 grams of carbs…  whereas one small arrowroot cookie is about 5 carbs.   That’s why it does pay to eat healthier carbs more often as you get more bang for your buck.)

7.  Insulin – as it was described to us – is the train that allows the glucose in your blood-stream to be used by your body.   Without insulin, your body is deprived of its easiest form of energy.  So diabetics must inject insulin into their body so that their body can use the glucose, which is vital for survival.

8.  If you are taking insulin injections like Sarah (as opposed to being on an insulin pump) and you are just learning like us – you must eat the same number of carbohydrates at each meal, including snacks, so you know how much insulin to give.   Jason has met with the dietician and she has given us a list of how many carbs Sarah can eat at each meal and snacks.   So Sarah can have 35 carbs at breakfast, 20 for snack, 50 for lunch and so on.    And these meals must be spaced apart at certain intervals.   And counting carbs can be tricky!  Jason is better at it than I am, but sometimes it’s a guessing game,  especially if you aren’t exactly sure how many carbs are in a recipe or food item.

9.   Diabetics must work at keeping their blood sugar within a certain range.   For Sarah – because she is young – we have a broad range of keeping her blood glucose levels between 5 and 10.   Below 5 is considered low, and should be treated with juice or another form of sugar to bring her sugar back up.   If her sugars are consistently higher than 10 three times in a row , we would have to start checking her urine for ketones… but I’ll get into that later. 🙂

10 . If you take Sarah out one morning and forget her diabetes kit and forget to bring along her morning snack, you can lose your mommy badge… ha!   Don’t laugh, it’s happened and I’m not proud.  But it just goes to show that for me caring for Sarah hasn’t become second nature yet.  Thankfully Sarah is in what they call the “honeymoon” period right now.   Her body hasn’t completely destroyed all her beta cells and she is actually making a tiny bit of insulin for herself.  This makes it a little bit easier to regulate her blood glucose levels right now, but still… I have to learn to think about Sarah’s diabetes all the time and even though I can get distracted by Ava, I can’t forget that Sarah depends us to keep her blood glucose levels in range.

And one of the biggest things that we’ve learned is that once again we are surrounded by people who are supporting us, and are caring for us even in this.  From Jason’s mom who has picked up the carb counting and needle giving with ease, to our neighbour Sheila who helps out and will feed  Sarah and give her her needles if we are away.   And her teacher Melinda, who has cheerfully taken on the burden of care for her at school.    And then there is our friend Dave who was also diagnosed with diabetes when he was young, who stopped by to meet Sarah and bring her a gift and chat with us.    It’s been a huge blessing.

When we sit down and think about Sarah having diabetes, it still makes us cry, but by God’s grace once again we’re getting through, which really is the story of our life right now.   We are so thankful for God’s goodness.

And now I hope that you don’t mind that I’ve shared this and hopefully you’ve  learned something too.

Oh drat this cold…

OK – so it’s been a crazy week and it’s all because Ava has a cold.  That’s right, a plain old-fashioned regular cold, but she doesn’t seem to be able to kick it and it’s causing us problems.

And I wrote about how we ended up in emerg on Monday because I noticed Ava was working a little harder to breathe, but were sent home and told to watch her closely.

Then Tuesday Ava was Ok, she was still coughing,  but then Wednesday just before dinner I started to clue in that Ava wasn’t doing so well… she was sweating constantly no matter what she was doing, but her feet stayed cold and were dusky looking, so that was rather worry-some.   When Jason came home and looked at her,  he asked right away if I was going to take her in,  so I called Sick Kids.   The cardiology Fellow on-call told to take her in right away, so we found ourselves back in emerg.

The Dr who was on that night was really great and was so knowledgeable about Ava’s cardiac condition.  He felt that Ava’s fluid levels were a little low and needed topping up.  His reasoning was that with her breathing quicker because of her cold and then with her sweating so much, her fluid levels had probably dropped a bit.   The lack of fluid was affecting her circulation and her heart wasn’t able to profuse her body with oxygen properly.   And so they upped her fluid by giving her an entire feed of just Pedialyte and it worked.   Very soon after her feet were pink again and she just looked better all over.   And not only did we have a great dr that night,  the emerg nurse we had that night attends our church!   We had never met him before, but he figured out that this baby Ava was the Ava from the prayer list.   And since I had been really worried about Ava that night,  it was cool that God arranged for someone to be on who knows what we are dealing with.   And then because our little Birdy looked so great right away and her blood-work came back fine, they swabbed her nose just to see what bug she had and sent us on our way.   That was definitely a record-breaking fast ER trip as we went there and were back home in three hours,  pretty amazing.

However Thursday afternoon I was holding Ava and she was sweating like crazy again and she was huffing and puffing she was breathing so fast.   And so again I called Toronto and again they told me to take her in.     And because they had already been talking with the London cardiology team about Ava, they all decided that they would admit her so that she could be watched for the night.  So back to the ER we went.    And really Ava didn’t look that bad, definitely looked better than the day before, but whenever Ava is doing something she shouldn’t,  they always worry about her heart, and they just don’t want to take any chances.

Avahospital

So we were admitted and Ava was hooked up to the heart monitor and sat monitor, and over-night all her numbers leveled out and looked great.   So thankfully this all doesn’t seem related to her heart function, it’s just her cold wrecking havoc.   After our London  Nurse practioner and a Cardiologist  saw her in the morning, and one of her meds got upped to hopefully help with her sweating,  they said that we could go after we got some blood work.

Not blood work!  Two words I dread to hear in reference to Ava.  And it’s not just because no child likes getting their blood taken, it’s just that trying to get blood from Ava is horribly difficult.  Mainly because as a hypoplast,  her heart couldn’t pump as hard in utero and so she has tiny blood vessels compared to other babies and they aren’t really close to the surface.  So often she gets poked repeatedly before they can get blood from her and it seems to be  very traumatizing for me… and probably Ava too, haha.    So the nurses  started trying, and they tried first tried to get blood from her temples… her temples????  Um yes, although I’ve never seen that done before.   But they tried and it must have hurt like crazy because Ava cried so hard I thought she would burst a blood vessel.     After they tried both sides of her head with no luck, they thought they would give her a break and call someone else in.

So the next nurse that tried though she found a good spot on her foot – but same thing, couldn’t draw back.   It seems that when Ava cries she does a full body clench and they don’t seem to be able to pull back any blood.  But then when they give up and pull out the needle, Ava relaxes and starts to bleed.  Go figure.    So after they stanched the bleeding from her foot,  they decided that after the next poke if it didn’t work they would give up – and so they tried the top of Ava’s wrist and they managed to get a tiny bit of blood from her.  Thankfully they gave up and that was that.  I don’t think I realized how worked up it made me seeing Ava in that much pain until later that night when we were home and Sarah and William both hurt themselves back to back.    I kinda lost it and told them that no one was allowed to hurt themselves anymore that night because my nerves were shot and I couldn’t handle it.   Nice going mom. 🙂

So now we are at home again and we are praying that Ava will kick this cold before it stresses her out more.   The London team alluded to the fact that Toronto might want to delay her catheterization because she is sick,  and that thought is depressing.    Ava needs her next surgery to get stronger and if we have to delay her cath, then we also delay her surgery.   And that would be hard to take as it could push her surgery into the summer and leaves her longer in this place were she isn’t very strong.

But again we get all our strength from God, all His peace and reassurance and hope.  And even with this cold of Ava’s and the awful weather that isn’t helping,  we know that we can get through yet another day by God’s grace alone.  And He is holding Ava in his hand and whatever happens it’s going to be OK.   But I will say it again,

Drat this cold!!!

Spoke too soon…

Well I know that I just posted that Ava was doing well in my last post, but apparently I spoke to soon.  The next morning after that post – yesterday morning – Ava woke up with a hacking cough.. oh no!   And then I noticed that it looked like Ava was trembling while she was sleeping, and sure enough she was breathing much faster than her norm and seemed to be working a bit harder to breathe  as well which didn’t make me happy.

So to be on the safe side I called her pediatrician and made an appointment to take her in that afternoon, but just to make sure I called our Single Ventricle nurse at Sick Kids to see what she thought, and she said that rather than take Ava to the dr, she should go to emerg.  So I packed up everything, and Jason drove us to the hospital.

And they were really good to us.   On one hand  – with Ava being who she is they don’t want to take any chances, but on the other hand, she wasn’t presenting that bad – not like the kid next to us with a terrible case of croup.  That’s the thing –  here I take Ava who I don’t want to get sick,   to hang out with the sickest kids in the city!  But thankfully we were in the isolation room so I kept that door closed.

They ordered a chest x-ray for her to see if anything was brewing in her chest – but thankfully her lungs are clear.  And her oxygen saturation levels are normal, so no pneumonia or anything at this point, which is fantastic.   And since she had just had an echo on Friday they knew she wasn’t in heart failure.   So after telling me that if any little thing changed with her or if I was concerned again to come right back, they let us go home.

But I have to admit that the cough does scare me.   Mostly because it takes so much out of her to cough and after a bad bout of coughing she typically breaks into a cold sweat.   So it’s stressing her out, and I just don’t want her stressed because that is definitely not good for her heart.   We want her to stay healthy so she will be in good shape for her heart catheterization which is only 2 weeks away!

So we pray.    And trust that God will be faithful yet again.  I love how verses come to mind in moments like this and this time it’s from Colossians… chapter 1…

1He is the image of the invisible God, the firstborn of all creation. 16 For by him all things were created, in heaven and on earth, visible and invisible, whether thrones ordominions or rulers or authorities—all things were created through him and for him. 17 Andhe is before all things, and in him all things hold together.

God holds all things together – isn’t that the coolest thing?  I love being reminded of that, and I love the image of the univerise  breaking apart if God withdrew His hand.     So this God who is so big and so able,  can certianly hold together my little baby’s heart.   And I can go to sleep tonight in peace trusting Him to do so.

Amen.