Home again

So we got released yesterday and brought Ava home from the hospital, hurrah!   It’s so good to be home, although Ava definitely isn’t 100%.   Her nose is still stuffy and it’s only today that she has started to smile again and look some-what happy.    Last night she was tired and lethargic which had me a little worried, so to reassure myself I paged the cardiologist on-call in London to just check to see if Ava’s behaviour was normal.  Thankfully the Cardiologist on call was the one who had seen Ava that morning and she felt that if Ava’s vital signs were good then I shouldn’t worry as it made sense for Ava to be feeling tired as she is still tying to kick this bug.

But praise God – that He kept Ava and held her and that she wasn’t worse than she was.  I had a moment of panic when I brought her in to emerg in London Tuesday night – because while she was being triaged – the nurse asked me to come with her somewhere more private – and she brought us into the trauma room.   The room then suddenly filled with people and dr’s and they started her on oxygen and inserted an IV and I was a little surprised, and then worried because I knew that she wasn’t right – but obviously didn’t see how bad she really was.   I guess the fact that her little half of heart was beating almost 200 beats a minute clued them in that something was very wrong.

I’m so thankful once again that we live close to a good hospital filled with competent people.  And everyone in the emerg at London takes Ava very seriously and I’m glad.   And again,  influenza could have taken Ava’s life,  but God spared her and I am so thankful for everyone’s prayers, so thankful that she is on the mend and is back at home with her family.

But now in the aftermath of getting a positive influenza diagnosis,   Ava’s catheterization is once again postponed and it looks like it won’t happen until the end of May.   Just to recap – the catheterization is a procedure where they will insert a thin catheter into one of Ava’s veins, go into her heart and test the pressures of her heart and lungs to see if she is ready for her next surgery – the Glenn.   And Ava desperately needs her Glenn surgery so that her heart won’t have to work so hard.    If everything goes right, after the surgery she won’t be as medically fragile and hopefully won’t require as much care… but that part is neither here nor there.  She is our child and we will give her whatever care she needs for however long.

And I was blessed to come home to a tidy house with ALL my laundry done thanks to my wonderful mother-in-law who took care of Sophia and lended a hand.   We couldn’t manage it alone with everything that we are going through and we are blessed with all our friends and family who keep helping us.    I keep saying that it’s like we are trying to juggle it all, but no matter how hard we try, we keep dropping balls…   but that’s our life right now.   God is certainly giving us a lot to handle, and as Jason always says, it’s amazing what you actually can handle. 🙂

So we are go grateful to be home and together again on such a beautiful day… Praise God!

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3 thoughts on “Home again

  1. I am so amazed at all your updates, even through all the busyness of your days!
    She is in our prayers daily, so thank you for keeping us up to date.

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