Still looking good!

Our little Ava is still looking good!    I took her to the cardiology clinic here in London on Friday and after the Nurse practioner and cardiologist looked at Ava on the outside and the echocardiogram showed them what they looked at on the inside, they agreed that she looked good, hurrah!  It’s always good news to hear.

And Jay and I certainly have no concerns with her right now…  even though she does have a cold, poor baby.  I didn’t really think that we would make it through all of March without getting something, especially considering our weather has not been all that it could be – and the other kids keep bringing things home.   Thankfully Ava seems to be tolerating this cold OK.   It’s all upper respiratory and even though it makes her cough and gag and sometime makes her vomit up her milk, she’s still growing and still gaining which is awesome.

And the count-down to her catheterization is on… I’m not sure how we are feeling about that so we can talk about that later.

Talking about Ava looking good, my mom had some fun last week and after giving Ava a bath thought she would give her a new hair-do…

Avahair

Oh our little Birdy – you do have an awful lot of hair!!!   And did you notice that her jammies have birdies on them?  I love it.

And we are so thankful that God is being so gracious to us and keeping her well.    I know that He is holding Ava’s little heart in his hands and that we can keep trusting Him every day.   So we praise Him alone that Ava is still looking good!

More milk and more sleep

So there have been some great developments in the sleep department over here.   As you all probably remember, we’ve been feeding Ava every 3 hours around the clock – so 8 times a day since we came home from the hospital back in February.    And thankfully Jason does the 6 am feed, but I still found it exhausting to stay up till Ava was done her midnight feed and then be up again at 3:00 am for an hour.  Thankfully I do get so sleep into 8 am or so in the morning – so it’s wasn’t like I wasn’t getting any sleep at all… however!!!

And then when we were at Sick Kids back on Mar 13th, the dietician had told me that if I added formula to my milk that it would increase Ava’s daily calories enough so I could skip one of her feeds… and as tempting as that was, I never could bring myself to do it.  First off, at that point Ava was refluxing like crazy, and then she got a cold and I just didn’t think her sensitive tummy would handle the formula well.  So I just resigned myself to our sleep-deprived schedule and consoled myself by the though that it couldn’t last forever.

So then I was very surprised and excited when we were back in Toronto last week and Paula – our amazing Nurse practitioner with the Single Ventricle Team – said that since Ava tends to tolerate volume over increased calories with formula, we could try to give her more of my milk per feed – and if she tolerated it OK then we could go on to skip a feed.  Now that sounded like a plan!  And with the dietician on board,  as soon as I got home I started trying her on the increased volume and it worked awesome.  Ava kept all the milk down no problem – and I got to start skipping a feed…  fabulous.

So now I skip her midnight feed so I can actually go to bed at a decent time (when I’m not blogging.. haha) and then I just get up once in the night to feed her and pump.   Jason still gets up for the 6:00 am feed (thanks hon!) and so I actually get some good sleep and I now feel rested in the morning – and that means I’m starting to feel like a normal person again.   And my mom is here today and she said that she can tell I’m sleeping more because I’m more alert – and probably not as touchy – although she’s nice enough not to mention that. 🙂

And our little Birdy is growing, slowly but surely…. she is now 11 pounds 3 ounces!   She is definitly getting bigger,  can you tell?

birdyeasterdress

And I just praise God that He provided this solution – and I think everyone here is benefiting from the fact that Ava is getting more milk and I’m getting more sleep!

Happy Birthday William

William turned 8 today,  and I find it very bitter sweet to see my kids growing up.  On one hand I’m excited to see how far they’ve come and what they’ve accomplished, but there is a part of me that always misses the 2 year old version of them.  🙂

Lately I’ve been thinking of just how amazing William and Erik and even Sophia have been through our whole journey with Ava and Sarah.   I’ll be honest, Ava gets most of my attention around here.  And then there is Sarah with her diabetes and all the time that we put into counting her carbs, checking her blood before meals and giving her insulin.

And through it all William hasn’t complained once.  Not once.   I’m so greatful for that.   I remind the boys often that things won’t always be like this and I hope they understand, and so in light of that, it certianly felt good today to focus on William and celebrate him and his 8 years, he is such a neat kid.

willbday

Happy Birthday William!  We love you so much!!