Waiting for the Big Reveal

So we are hoping tomorrow is the day of the ‘Big Reveal’…  where we hear about what the plan is for Ava.  Will they consider doing surgery to fix her leaky tricuspid valve, so that we can hopefully get her Glenn?   Or will we just continue to wait and repeat the cath in a few weeks.  Or are there options we haven’t even considered.   We shall see.

And this morning when rounds came by I found out they found blood in Ava’s urine again last night,  so they have started her on antibiotics, and tomorrow she will get an ultra-sound of her kidneys to make sure the poor baby doesn’t have kidney stones.   Apparently one of the draw-backs to being on diuretics for long periods of time – in Ava’s case, her entire life – is that it makes you prone to kidney stones.    Oh man, I hope she just has a bladder infection!

But other than that, we had a good day.  Ava was happy except her teeth – or lack of – were bothering her and she didn’t nap that great, but I still enjoyed being with her today.

I am finding the room we are in a bit sad, even though it is actually a cheerful room people wise.  We are sharing the room with our little friend Alleeda, who is 15 months old and has been waiting for a heart since last summer.  And there is also a baby in our room around Ava’s age who has been waiting for a heart since Christmas.   The families of these kids are so cheerful and patient in face of this adversity, but I wish I could give them what they need now.     But hearts aren’t easy to come by and maybe someday I will start a campaign promoting organ donation for children, but right now we kinda have our hands full.  🙂

So please pray that tomorrow we actually hear some good news for a change and the ‘Big Reveal’ won’t be a big disappointment.

Oh – and thank you for praying for Bella!   She is so much better today – she spiked a fever last night but was started on antibiotics and is doing better.   I was able to share with her mom that everyone had prayed for her and that was awesome.

And thank-you all as well for your prayers and comments and emails… they are so encouraging, you have no idea.

We’ll keep you posted!