Happy Birthday Sophia!

Sophia turns 4 today, Happy birthday Sophia!!!

Sophiabday

She’s growing up so fast, our little sweetie pie.    Our sweetie pie with an iron core.  She’s sweet but tough and it’s a good thing because it’s meant that she can transition between our house and Oma’s and the Ronald MacDonald house no problem.   She’s fine with whoever can take care of her,  as long as they love her and can stand her constant chatter… hahaha. 🙂

Last year when I expecting, she  had to transition from my ‘baby’ to my ‘little one’, but now I think that we have to transition again to just our little girl.   Oh Sophia, we love you!

And talking about transitioning, we’ve all settled in well here at the Ronald MacDonald House.  Although I was a little disappointed yesterday when I found out that Ava would be moving back into her own room at Sick Kids, and out of step-down where a nurse was always in the room with her.  She does’t need that level of care now that’s not on the IV heart meds, but it was really nice to know that she was never alone,and so I didn’t feel guilty when I came back to the RM house to spend time with the family.

Now I will start sleeping at the hospital again so Ava won’t be alone which is OK, it’s just another change.   And since Ava typically does sleep through the night, if she has had a good day and settles well,  I will come here and sleep at the RM house occasionally.

And it’s a good thing Jason and I weren’t asleep last night at 10:15 when the fire alarm went off here at the house.  Even though the alarm is VERY loud, we had to wake all the kids up and take them outside until we got the all clear (someone had probably just burnt popcorn) and so that was a bit of an adventure.

And miss Ava is doing well… but probably not 100% percent.   She is coughing more again and so today will get her third chest x-ray since we arrived on May 10th and will get yet another nasal swab to rule out any new infection.  I hope it’s not anything new; but if it’s not viral, that means the cough is probably related to her poor heart function and that is not good either.

Today we had our first introduction meeting with the transplant team, so as of tomorrow Ava will get some blood-work and tests to start the process of listing her.   This really seems surreal, and it also means a complete change of care, from the dr’s and nurse practioners that we’ve grown to know and trust, to a completely new team, but again thankfully we’ll just do this one step at a time and I’m sure this new team is just as wonderful.

Well I must go to spend the rest of the day with my family and our little birthday girl.

As always, I’ll keep you posted!