Ava had an OK day today, I think her teeth were bugging her and that made her a little cranky, and that tired her out so she slept most of the day. But just before dinner she woke up and was happy and smiling for me. And then tonight Jason and Will went up to see her and got more smiles again. We are so grateful that even though CPAP is her life now, she can still give and receive love and bring us joy.
I just wanted to share a verse that I’ve been clinging to lately that another cardiac mom emailed me….
John 9:1-3 (ESV)
Jesus Heals a Man Born Blind
As he passed by, he saw a man blind from birth.
And his disciples asked him, “Rabbi, who sinned, this man or his parents, that he was born blind?”
Jesus answered, “It was not that this man sinned, or his parents, but that the works of God might be displayed in him.
It reminds me again that God has a purpose for Ava and He planned for her to be exactly how she is. I pray that her story would be one that does glorify God and we truly pray that the works of God may be displayed in her… and wouldn’t it be amazing the work He displayed was bringing her a new heart? Oh God, please bring Ava a new heart!
And just in case you have a minute, I took a little video clip of Ava last night. It’s nothing super or fantastic, it was just Ava happy and playing with me talking to her. She looks pretty good, but because she’s not on CPAP she is working harder to breathe and she was only able to play for a few minute before she was all tired out.
Oh – and I guess I’m so used to Ava I don’t see all her extra hardware… but I wanted to assure you that nothing on her, the chest leads or the ng tube going in her nose, or the picc line in her arm hurt her, now they just feel like part of her and she is very used to them. 🙂