A Verse and a Video

Ava had an OK day today, I think her teeth were bugging her and that made her a little cranky, and that tired her out so she slept most of the day.   But just before dinner she woke up and was happy and smiling for me.  And then tonight Jason and Will went up to see her and got more smiles again.    We are so grateful that even though CPAP is her life now, she can still give and receive love and bring us joy.

I just wanted to share a verse that I’ve been clinging to lately that another cardiac mom emailed me….

John 9:1-3 (ESV)

Jesus Heals a Man Born Blind

 As he passed by, he saw a man blind from birth.
 And his disciples asked him, “Rabbi, who sinned, this man or his parents, that he was born blind?”
Jesus answered, “It was not that this man sinned, or his parents, but that the works of God might be displayed in him.

It reminds me again that God has a purpose for Ava and He planned for her to be exactly how she is.  I pray that her story would be one that does glorify God and we truly pray that the works of God may be displayed in her…  and wouldn’t it be amazing the work He displayed was bringing her a new heart?   Oh God, please bring Ava a new heart!

And just in case you have a minute, I took a little video clip of Ava last night.  It’s nothing super or fantastic,  it was just Ava happy and playing with me talking to her.  She looks pretty good, but because she’s not on CPAP she is working harder to breathe and she was only able to play for a few minute before she was all tired out.

Oh – and I guess I’m so used to Ava I don’t see all her extra hardware… but I wanted to assure you that nothing on her, the chest leads or the ng tube going in her nose, or the picc line in her arm hurt her,  now they just feel like part of her and she is very used to them. 🙂

Enjoy!

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10 thoughts on “A Verse and a Video

  1. I had Erik in Sunday School today (it was a lot of fun, but it could be because I let him shoot foam arrows and Andrew showed him how!) and we talked about the video a bit. He really liked having a chance to see it uploaded and being able to stay up late! 🙂 I like that our Sunday School prays for Ava as well.

  2. I have to say that Ava is one gorgeous little girl!! I love her big bright smile and curly hair. My little man Isaiah had a NG tube in for 11 months and like you say its just a part of him!! Now he had a G tube in his stomach. Some people have asked me what’s wrong with him? I say that there is nothing wrong he’s prefect!!! I know that there was a purpose for what our little boy has gone through and that is to show everyone how great our God is and that he will never disappoint us. He hasn’t failed me yet and I know that whatever happens he will help us through it all. All glory and honour to Him that can do what seems like the impossible! Isaiah is doing fantastic and I thank God everyday for what he has done and going to do. Put your trust in him and he will never let u down.

  3. Oh, Lisa, if anyone walked into the room right now they’d see me smiling and nodding (like an idiot!) at my computer screen! What babies can do to us….. I so enjoyed the video – even better than all the beautiful pictures! It’s amazes me to watch Ava doing all the “normal” things (“talking”, smiling, checking out her lines) in a not-so-normal situation. Continuing to pray for God’s will and His strength and grace for you all!
    Kathy

  4. Awww thanks for posting! What a sweet blessing! I so enjoy reading your heartfelt blog! We are praying for your family.

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