A moment…

So yesterday I had a moment.  That moment was defined by getting to church and then as worship began, starting to sing, and then starting to cry.  And then even though I was feeling foolish I wasn’t able to stop.    A moment.   And I knew exactly why I was crying, it just hit me like a tidal wave that I missed my Ava. Right there and then while I was standing in church, I just missed her horribly and it made me so sad.

Sometimes these waves of grief just hit out of no where, but this wave actually started on Saturday when I was out driving.   Something about the weather reminded me of being in Toronto in December three years ago and spending every day sitting at the foot of Ava’s bed in critical care.   And then yesterday on the way to church I mentioned that Ava’s birthday was coming and I asked jokingly what we were getting her for her birthday.   Jason said we were getting her a Christmas tree and that is exactly what we are getting her.  Last year we ended up getting our tree on her birthday and so we decided that we were going to drive out to the country and get a Christmas tree from the nice tree farm that is just down the road from her graveyard every year on her birthday.    And don’t worry – it’s not morbid at all – just happy and festive and it kinda feels like we are including her.

So the wave was growing without me even realizing it, and then the moment hit.  And the funny thing about my grief is that I’m never truly sad that Ava died.  Considering how sick that poor baby was, she is exactly where she is supposed to be – safe and snug in heaven and I can’t argue with that.  When I cry, I cry for the baby I didn’t get to keep down here.  I cry for a baby that my heart wishes was born healthy, with her little reddish curls and adorable smile.  That would have turned our lives and our house upside down.  That would have kept the kids busy chasing her around and would have been a fount of cuddles and kisses.  She would have added to our family so much.  On December 4th she would have turned three and I’ve missed it all.  That’s why I cry.   I guess it’s purely selfish, but it’s such an aching loss… I suppose like all loss is.   Isn’t it strange that most of our hurt in life involves loss?   But then grief is the emotion that God gave us that helps us process and release these things we’ve lost.  But I think that my well of loss is so deep I might have to grieve for the rest of my life, but that’s OK… even though I’m a puffy red crier, not a pleasant sight at all.

But as I stumbled out of the service yesterday to go and wipe my eyes and calm my heart,  the first person I saw was a friend who gave me a big hug and listened, I was so grateful.  And after church I made a beeline for a lovely woman in our congregation who herself has experienced so much loss and we talked and she prayed for me.  And that’s when I think of this verse in  2 Corinthians…

 Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, who comforts us in all our affliction, so that we may be able to comfort those who are in any affliction, with the comfort with which we ourselves are comforted by God.  For as we share abundantly in Christ’s sufferings, so through Christ we share abundantly in comfort too.   2 Corinthians 1:3-5

(Here are mine and Jason’s four blessed distractions which I am so grateful for….)

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God is the God of all comfort and He is always there to comfort us in our affliction and then in turn we can comfort others.  And like I was comforted yesterday I hope that I can comfort others when I say that I’m OK.  I have lost a child, but am living testament that by God’s amazing grace and by his comfort, day after day my heart is healing.  I just still have my moments.

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Baked Jeans

Baked jeans and a bunch of things, that’s what this post is made of.

Back in the olden days when the weather was warmer in March and April we would often take a drive to our family cottage for Good Friday.  (Our church rents so we can’t hold a traditional Good Friday Service.)  It was usually our first view of the cottage after the winter, and we would stop for breakfast on the way up and just have a great day.    So this year we decided to do that again, but thought we would also spend the night  –  for fun.  Ha.   But it wasn’t all fun,  because for some reason although we KNEW there was still snow at the cottage, we didn’t exactly prepare for it.  So the kids played and got soaked playing in the slush without snow-pants and ended up having to spend the rest of the day indoors.  We had packed light since we were only staying for one night which meant the kids had to change into their pj’s and we may have all gotten a little cranky from being stuck inside for the rest of the day.   And then what is a mom supposed to do when faced with a bunch of wet jeans in a cottage with no washer or dryer?  Well she bakes them in a convection oven at 250 degrees for 10-15 minutes.   Who knew baking jeans would be so easy, or so smelly (that’s ditto for the socks, but WAY stinkier).

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Backing up now to three weeks ago – I had the opportunity to go to SickKids and share our Ava story with a group of people taking a palliative care course.  It’s such an honour to be asked to go and Jason and I both feel it’s just a small way that we can give back to the hospital who gave so much to Ava.  It’s always a pleasure to be there and meet with some of the wonderful people that we got to know while we lived in Toronto.  It actually really makes me miss my time in Toronto and I look back with a little bit of longing for those days when Ava was alive and we saw our Toronto people regularly.  But now I’m just happy for any opportunity to see them and I also have to thank my dad who comes with me because we had such a great day together and I love the company and I love not having to drive in Toronto in my not-so-small vehicle.

And now backing up all the way to the end of March (backing up seems to be a common theme here) – we had 3 inches of snow early one morning on a day that warmed up pretty quickly.   Will, Sarah and Sophia headed out the door as soon as they could and built these 7 snowmen… one of each of us.

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But since it warmed up so quick, the snowmen starting melting and first we saw daddy topple, then I bit the dust, and noses all fell off and it wasn’t pretty.   That afternoon the girls and I went and ran some errands, and when we came back, Sophia got out of the vehicle and ran into the yard yelling, “Is Ava still alive?”   I laughed out loud.  Oh dear sweet Sophia, I wish, I wish Ava was still alive.  But as for your baby snowman, it may have died.  Life can be harsh. 🙂

And staying on the subject of life being harsh, yesterday at church they mentioned a conference coming up next weekend at Harvest Oakville by Paul Tripp called When Suffering enters your door.   He says that we shouldn’t be surprised by suffering, it’s a universal experience for all humanity… and they showed this clip – which I HIGHLY recommend because it quickly explains how Jason and I were able to have the hope that we had in the face of our suffering.

Which brings me back (one more time) to a quote that I found when Ava was sick which I blogged about back then as well, …

In the mid-16th century Francis Xavier (1506–1552), a Catholic missionary, wrote to Father Perez of Malacca (today part of Indonesia) about the perils of his mission to China. He said,

The danger of all dangers would be to lose trust and
confidence in the mercy of God… To distrust him would
be a far more terrible thing than any physical evil which
all the enemies of God put together could inflict on us, for
without God’s permission neither the devils nor their
human ministers could hinder us in the slightest degree

And a great verse from Romans 8:18

 For I consider that the sufferings of this present time are not worth comparing with the glory that is to be revealed to us.

Suffering if something that we all will  experience at one time or another, but praise God that through Christ, it never has to be without hope.

Amen!

Nailed it

I am very aware of all my failures in life, they are too numerous to count.  But on the bright side some of my failures make me laugh and hence should be shared.  Take this for example, Sarah’s birthday cake… if I was going to try to make it as beautiful as Martha Stewart’s vanilla cake, then I can definitely say I nailed it.  lol

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Isn’t it just beautiful in all it’s sloppy glory?   I think I’ve known since I was 10 that you shouldn’t ice a warm cake, and that is especially true if you want to ice it with a concoction of pudding and whipped cream, which I found out apparently just melts on a warm cake.    Will I ever learn?   But it did taste good, so I suppose it redeemed itself.

So yes, Sarah did turn 8 a few weeks ago and it was fun to celebrate with her and appreciate her for all her gifts and abilities.  And just because you are 8 doesn’t mean that hair-brushing is a priority in life –  I mean really – it’s such an insignificant thing.  Maybe it will be a priority when she is 15?   Good thing she can clean a bathroom, sew and do lots of other thing really well to make up for it.

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And if that cake I made for Sarah’s birthday looked scumptious, then I’m sure you’ll appreciate this concoction…

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“Since when do chicked-peas, boiled eggs, peas, beets, avocado, blueberries and pears belong together in a blender?”, you might ask.    Especially as they were soon joined by joined by yogurt, milk and olive oil.   And since I can tell you that yes, they were blended together your next question might be,  “Who in the world would eat that mixture?”

Well this sweet little person would…

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Remember our little friend Aleeda who we met at Sick Kids?  She received a heart transplant July 2013 and is doing so well.  She came home from the hospital with a g-tube, and she was being primarily fed by that, but rather than push formula into her tube, her mom Tania opted instead to make her real food blends “purees” that mimic the nutrition in a formula supplement.  These are so much better tolerated, as in when Tania pulled the formula and started feeding purees to Aleeda, she stopped puking every day.    And Aleeda has thrived on them and since her g-tube was pulled will actually eat them orally, smart little girl.  I got to help Tania and made a few batches of them for the freezer,  but Aleeda is doing so well that she is almost eating all real food now.  It’s so wonderful to see her progress, I find it just amazing.

Alleeda and her sister Britton came to play with us one day while their mom was at the hospital with their new twin sisters.  My girl’s love Aleeda and her sister Britton , we just don’t see enough of them…

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And since Sophia is the baby of our family now,  it’s good for her to spend time with children younger than her,  I’m afraid that Sophia enjoys being our baby a little too much, but I can hardly blame her.

And now it’s Valentine’s day today and winter trudges on.  Thank goodness I can kick the kids outside to enjoy the snow…

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So I can enjoy some peace and quiet haha.      I do try to enjoy the winter as well, but more often than not it seems I’m enjoying it inside by drinking coffee and looking out the window.  I just venture out to take the pictures.

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Like this one of the moon… see, you need winter for pictures like this.

So even though my cakes aren’t winning any awards and winter is still here with a vengeance, we feel so blessed on this Valentines day to have a loving family and friends to enjoy it all with.

God is good!

A new commandment I give to you, that you love one another: just as I have loved you, you also are to love one another. By this all people will know that you are my disciples, if you have love for one another.”

John 13:34-35 

Amen!

 

 

 

 

 

 

 

God at Work

God is always at work, it’s  a fact.  And I know that Jason and I are always so encouraged to hear how God is moving in other’s lives, and so glad that our church, Harvest Bible Chapel will often will take the time to have people share their stories in front of our church.   At the end of November Jason and I had the opportunity to get in front and share our story.  That was an emotional and a pretty big deal for us, but we felt compelled to tell of God’s faithfulness even through Ava’s death, and on the whole I think it went well.   We both broke down towards the end both times (we shared in both services) but it was joy to be able to say that we could still praise God for his faithfulness even through our story didn’t have a happy ending.   When it goes online I will definitely share the link of the video.

Now today I going to share another link, one to a brand new Harvest Newsletter done through our church.

I’m a little biased towards this newsletter because I had the opportunity to submit an article for it.   I’m writing a 3 part series on our Ava story and the first one is called  “Peace Amid Turmoil”   It was a huge honour to be able to contribute, not to mention it was my first time working with a editor.  That was an experience that I first found a little tough (someone is actually critiquing my writing!!!!)  but in the end I found it very insightful and helpful.

Here’s the link!   God at Work Magazine

In other news,  I wish I could say that writing the article has been the reason I haven’t been blogging, but the truth is, well the truth is I just haven’t blogged, shame on me!   But I can fill in some blanks to say that we had a great Christmas.  Here’s a pic that I may have taken in the New Year right before we took down the tree…

 

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Our family really loves Christmas and its great to have a break from school and we enjoyed all our time spent with family and friends over the holidays.  We always make lots of great memories and this year we may have started a few new traditions.   The first was that we went and got our Christmas tree on Ava’s birthday which made the day special for the kids.   And then about a week later we made a trip to Toronto – just to revisit some of the places that hold the most memories of Ava for us.   We went and saw the staff who were so good to us at the Ronald MacDonald house, and saw many of our beloved nurses at SickKids.  It’s kinda funny because I know my kids would move back into the Ronald MacDonald House in a heart-beat and I think that is  a huge testament to the great job they are doing there.    I would love us to make a special visit to Toronto every December to be reminded of Ava and also to remember how good God was to us during that time.

And now it’s January and we keep moving ahead.  Lots of things are happening and we keep praising God for the fact that He is always at work and will always be faithful.

Amen!

 The steadfast love of the Lord never ceases;
    his mercies never come to an end;
they are new every morning;
great is your faithfulness.

Lamentations 3:22-23

 

 

 

 

Can’t wait to show you…

Ava’s gravestone!    Today we are celebrating Ava Day – our sweet little Birdy’s birthday;  she would have been 2 years old today!  It’s funny when I think about just how different life would be right now if Ava had been born healthy  – or if she had managed to get a heart and was doing well.   How different and marvelous it would be to have a little 2-year-old running around right now!

But that is not our story and we can be thankful that she is where she is.   We are glad we have this day to remember her, for her sweet smiles in spite of the pain and for how much we loved her and treasured every moment we had with her.

And here is her stone which we are so pleased with, it turned out exactly as I hoped…


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And here are the kids with it…

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You can’t really see it in the picture,  but the kids hand prints are in the foundation of Ava’s stone.   It was Jason’s idea and I love it.  I love it because the kid’s hand prints are on Ava’s coffin that Jason made and we want them to feel a part of this whole thing as much as possible.  You can see them clearly here before the stone was installed…

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And here they are showing off their hand-prints…

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Another thing that is a little tough to see if the photos is the verse on the bottom of Ava’s stone.  It’s her verse, Psalm 73:26…

 My flesh and my heart may fail,
    but God is the strength of my heart and my portion forever.

All I can say to than is AMEN.

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We can’t wait to see you again Ava!

Mama Pancreas

November is Diabetes awareness month!   I should have posted this last Friday on World Diabetes Day, but I’m not that organized.    Now perhaps I should have named this post ‘Mamma and Papa Pancreas’;  but as I’m with Sarah all day, every day now–I really do feel like I can safely call myself Mama Pancreas without stepping on Jason’s toes.

Sometimes, actually lots of times, quite often really,  I tend to forget just how much Type 1 Diabetes has changed our lives,  and more importantly how it has changed Sarah’s life.  And this is the part that makes me what to stop and have a little cry for my daughter who needs insulin pumped into her around the clock, who wears an electronic device 24/7, and who can’t remember what it’s like to go a whole day without pricking her finger at least 5 or 6 times.   I know she would love to just go back to those days where she could just eat something, anything, without having to stop and think about how many carbs it is and then tell her pump that number so that she gets enough insulin to cover that food.   To not have to endure a site change every three days, where we freeze a little patch of skin on her tummy, and then insert another infusion site into her, and then have to put up with the rashes from the medical tape and spots on her tummy from previous sites that hopefully one day will fade.

Whew…. diabetes is not fun.  But we do have lots to be thankful for still, yes even in this.   First of; it’s a great day-in-age to have diabetes because they seem to be getting closer and closer to a cure – or at least effective work-arounds all the time.   So that is exciting.   And to be able to wear a pump and have the control that we have over Sarah’s blood sugar is wonderful too – even if it does mean I get the privilege of checking her blood sugar before I go to bed and sometimes even in the middle of the night.

And I’m so thankful that Sarah is who she is–a strong brave girl who doesn’t let diabetes get her down.   She swam all summer long, and was in and out of the lake and pool like a fish.  She plays hard outside and inside and it hasn’t stopped her from doing anything she wants to do.    Once in a while she breaks down a little and we have a little cry together over it, but then she’s off again.   And her insulin pump that she started wearing last year at the end of January has been wonderful and her A1C’s (a test they use to look at blood sugar levels over the past three months)  have been really good, so that is encouraging.  I try so hard not to get frustrated with myself and with her when she eats something and we forget to bolus and her sugar gets out of whack.   But really,  there doesn’t seem to be much of a point to strive for perfection with blood sugar control because even things like her getting really upset can affect her  levels.   It is what it is.   It’s a treatable manageable disease that God has allowed into our lives for His purpose and His glory and we accept it — sometimes rail heavily against it but I know that God understands that we still feel pain even when accepting His will.

Maybe things like this are put into our lives to make us look forward to heaven more… no diabetes in heaven, hurrah!   I’m just thankful that we have Sarah and that she is healthy and that we get to enjoy everyday with our precious daughter who is growing up so fast!!!

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And I love the way she doesn’t care that her pump is out there for the world to see,  in fact I think it’s great.

Here’s this verse AGAIN that we can cling too;  I can’t get enough of it…

 For I consider that the sufferings of this present time are not worth comparing with the glory that is to be revealed to us.  Romans 8:18

Heaven is going to make all this so worth it!

Amen.

What we’ve been up too…

And here I was, planning to get back to blogging and do it regularly, but as this post is almost two months later, that clearly didn’t happen.  But what did happen was that we had a great summer with our family and friends which ended way to quickly.   And then… well I hinted at this a long time ago, but this fall we made a huge decision for our family going forward,  we started homeschooling!!!!   Yes folks, it’s true, we decided to pull our children out of the public school system and start teaching them at home, it’s kinda exciting.  And that probably explains why I haven’t had much time to breathe, let alone blog.

It’s been about 6 weeks and I can cautiously say it’s going well… although I can pretty much guarantee this won’t be a blog where you come to for homeschooling advice.  Rather, we are likely to be the blog that other homeschoolers visit so that they can feel good about themselves… haha    But we are creating a daily routine for ourselves and things do seem to be getting learned so that’s good.   I’m cutting them some slack right now because I KNOW without a doubt that none of my children would have ever flung a math book across the room at school, but at home that can seem like a good thing to do.   I guess trying to set up structure and routine in a place where you feel the most comfortable isn’t the easiest.  But we are persevering.

And the kids are doing really good, and seem to be enjoy being at home.   They really like the fact that if they hunker down and get their work done, it leaves them more time to do what they want to do.  And I like that we can tailor their education to each of their strength’s and weaknesses…  which also means we have to work around my strengths and weaknesses.  Weaknesses in the plural.  Homeschooling is humbling, it really is.

On a lighter note,  I want to take this moment to brag that our William came in 2nd in his cross country meet last week, way to go William!

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He couldn’t run in the Public School’s Cross Country meet this year, but ran in the Christian school meet instead.   There was still a large crowd and Jason thinks there were over 75 boys in his race, maybe more, so we were really very proud that he did so well.  I’m not sure where he got his speed from, maybe from his dad, but it certainly is fun to watch.

I wish I had been able to be there, but as it happens  I was in Toronto at SickKids that day.   I had been asked by the PACT team if I would come and speak at a seminar they were holding on palliative care, and I was very honoured and so said yes.  My mom came to be our substitute teacher for the day, and my dad came with me to Toronto.  I thought that I might cry too much or take too long, but praise God, it all went well.  There was a question period afterwards and I really enjoyed that, the students of the course asked me questions and one of the Dr’s on the team sat with me and facilitated as well as asked me more questions, and I just thought it was a really neat experience.   Not only was I pleased to give back to SickKids in this way, but I was able to see lots of our 4D staff, and one of our nurses from the CCU, as well as some members of the PACT team I hadn’t seen since last August.  Going back to SickKids is always bitter-sweet – but going there makes me feel close to Ava so it’s all good.  Jason and the kids wished that they could have joined me, so we are hoping to go back again soon.

As far as the other kids and what they are up too… Sarah is doing pretty good with her diabetes and her pump – she actually deserves a whole blog post for an update which I will do next.  And Sophia is just her happy sunny self… although lately it seems that she is fed up with being the youngest child.  She is taking to heart every time she doesn’t get to do something or feels left out – it’s tough being five years old.   Erik is programming his heart out  – which means he is still doing things that befuddle me completely so that’s good I think.   Jason is keeping busy as always and I am so thankful for such a wonderful supportive husband who takes such good care of us all.

I wish I had some recent pictures to show you, but I’ve been terrible and haven’t been taking pictures lately, so I will have to leave you with some that we took during our vacation in August.  These first three are pics of us sending off Chinese lanterns to remember our sweet little Birdy.  Jason found them for us and we loved sending them off… they were beautiful and it felt very fitting…

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And here are the four turkeys all together…

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So that’s what we’ve been up too in a nutshell.   We are so thankful for all of our blessings and God’s mercy towards us… it’s amazing.

Ephesians 3:20  Now to him who is able to do far more abundantly than all that we ask or think,according to the power at work within us,
21 to him be glory in the church and in Christ Jesus throughout all generations, forever and ever. Amen.

 

Homesick

Wow, it’s me… I’m back.   It’s been a long while,  almost two months, but I think I”m ready to start again.    I do want to thank everyone who sent me a kind word about continuing to blog back in the spring.   Back when I wasn’t sure I was going to continue, it was encouraging to know that there were those of you who still enjoyed reading what I had to say, even when I felt that nothing in our lives seemed worthy of blogging about.

Lately I’ve been composing blog posts in my head so I knew that it was time to start writing again, for better or for worse. 🙂

Here’s a quick catch-up on what we’ve been up to… let’s see,

End of June and the last day of school.   I love this pic… Sophia is crying because she was going to miss her teachers and Will is just happy…

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June 28 Erik had a birthday and turned 11 on us.  Here he is all excited about power packs that he received that he wanted to use to power his…

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Raspberry Pi.  It’s Erik’s computer that occupies him for hours and hours.  He ordered more parts for it with his birthday money and was thrilled, as we all were of course. 🙂

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He’s such a neat kid even if he is a computer nerd.  I’m now come to grips with the fact my eleven year old son is smarter that me.  But it’s actually turning out to be quite handy, so I don’t mind.

OK – so moving on.  Summer vacation… we’ve spent lots of lazy mornings at the cottage…

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See how Sophia smiled so sweetly for me and Sarah’s like “Whatever mom”?

And the boys spent lots of nights fishing with Jay &  grandpa at the cottage – and actually catching fish this year… woohoo!!!

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I’ve kept the kids busy this summer working as my ‘minions’… here they are painting a new desk for Erik’s room…

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They did a pretty good job actually.  And we’re even raising a few monarchs again this year, courtesy of our butterfly garden we planted years ago.

This beauty emerged just yesterday…

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This in on top of swimming, riding bikes and playing with friends.  There is never a dull moment.

And then last week we celebrated my birthday.  Sophia asked me if I was turning 24 or 93… I only wish and hahahahaha.   But it was strange, for most of the day I just felt homesick…- homesick for Toronto – where we were living last year.

I spent the day missing the nurses & other friends at Sick Kids that made me smile and laugh as well as listened to me when I needed to talk.   I missed the time I had just to sit and pray and drink coffee.  I missed the Ronald MacDonald House and walking through the hot concrete jungle that is Toronto in the summer.  And I missed my precious baby Ava… and I wished I knew then that I only had a few more weeks here with her on this earth.  And the strange thing about my homesickness is that things weren’t all rosy last year at this time.  Ava was definitely struggling and the chickenpox scandal had gripped the Ronald MacDonald House (someone’s child broke out in chicken pox and they locked down the house for weeks and weeks, so no programs for the kids or dinners) so Jason and the kids were spending a lot of  time away from Toronto and I was alone with our sick baby.    And  it was all very tough.  But like I said, this week I missed it all.. the good and the bad because it meant Ava.  We all miss her so very much.

But Jason and I also still know that it’s still all good and Ava is exactly where she should be.  We are honored that we had the privilege of being her parents for as long we did and in two weeks when we mark the day that she died – August 15th – we know it will be tough, very tough.   But once again we can just marvel at God’s amazing grace and how He was so faithful and brought us through our Ava journey with our hearts broken, but in other ways, still fully intact, resting in His peace and love.

As I was writing this I was thinking about how life really is so fleeting… and this verse came to mind….

Psalm 103: 15 – 18

As for man, his days are like grass;
    he flourishes like a flower of the field;
16 for the wind passes over it, and it is gone,
    and its place knows it no more.
17 But the steadfast love of the Lord is from everlasting to everlasting on those who fear him,
    and his righteousness to children’s children,
18 to those who keep his covenant
    and remember to do his commandments.

Ava was our sweet little Birdy, who came and flew away so quickly – but I am so grateful to God for the gift that she was for as long as we had her.

Thank you Lord, and give her a kiss from me.

Amen.

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Half of a decade

Five whole years ago, this little girl joined our family…

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Yes, it’s true, at the end of May Sophia turned 5!     And over this winter she made the final transformation from little one to little girl.  Jason and I are almost sad that our baby Sophia has completely disappeared and been replaced by our little girl Sophie.

This little Sophie who loves all things pretty and would wear a ‘beautiful dress’ every day if she could.  She hates cleaning up with a passion, but can play with any child of any age or gender and have a great time.    She has the most wonderful put-on baby voice that any parent would be proud their child possessed, but is also capable of  intelligent thought and we’ve enjoyed many conversation with her over the past while.

She is the perfect youngest child and her siblings all love her except when she’s driving them crazy, and in short she’s a joy and a gift from God and we are so blessed to have her in our lives.

Happy 5th Birthday Sophie!

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Psalm 127:3  Behold, children are a heritage from the Lord, the fruit of the womb a reward.

 

 

 

 

A cowgirl and a cupcake

Thank goodness last week’s festivities are over!   We had alot of fun as a neighborhood again this year, getting together to eat and carve our pumpkins the night before the big day.   We produced such works of art as this…

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and this, except it wasn’t so fuzzy in real life…

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And the next night we enjoyed having a cowgirl and a cupcake in the house….

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Although they did come back a little wet and bedraggled thanks to the rain.  However Sophia has never been one to put herself out for anything – even candy –  so she didn’t last that long and was very happy with her tiny haul.  Sarah got a bit more candy, and the boys (dressed up in Star wars characters) ended up getting a ton… but soon problems arose.   Sarah was sneaking candy.  And who can blame her?  I know it’s wrong and we didn’t like it,  but she was a lover of candy before her diabetes, so I would have rocks in my head if I believed that this issue was going to get better after her diagnosis.   And it was frustrating to have her sugar’s all over the place, even though we were trying hard to allow her treats within her target carb limits.

So on Saturday afternoon I traded the girls a new little stuffy for their candy… yahoo,  what a coup!  But there was still the boy’s candy and they were away visiting my parents for the weekend.  But I got them today with Lego sets that we had left over from last Christmas – and now I don’t have to worry about Sarah finding candy to sneak.  The boys got to keep a tiny bit that they promised to hide – they better!  But at least the bulk of the candy is gone and that makes me happy.    Super happy for us and for Sarah and trying to keep her healthy.

On the weekend, we got to enjoy a different kind of sweetness…. a precious new baby courtesy of my younger brother and his wife.

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We all enjoyed holding her and getting our ‘baby fix’.    I think sometimes people worry about me around babies, but the truth is that I don’t want other people’s baby’s, I want my own baby back!!   And I can hardly begrudge anyone a healthy baby, when I had four healthy babies before Ava.  So I just enjoy getting snuggles and then I enjoy giving baby’s back to their parents when they start to cry.  🙂

And speaking of our baby, Ava would have been 11 months today.   It’s hard to believe, and it’s kinda strange actually.  And I’m not sure how this is supposed to work, if she is forever going to stay a baby in my mind, or if I’m supposed to ‘allow’ her to grow up.  But whatever it is,  we miss her and wish that she was going to be with us to celebrate her birthday next month.

When I was in Toronto a few weeks ago they gave me Ava’s final bravery bead… a bereavement bead, a  little butterfly.

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I probably mentioned bravery beads way back, but at Sick Kids a child can collect ‘Bravery Beads‘ where they get a bead for every blood draw or test or poke or clinic visit.  It’s a neat program and although Ava never understood her beads, I did and it’s just such a testimony to what she went through in her short life.

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And I didn’t even do one for one on the beads… I would do one blood work bead for every 10 she got, but still, the meaning is quite clear.  Our strand was quite humble compared to other warriors at the hospital, but I know that I will treasure them forever.  And now the strand is complete and to be honest, for all their colour and cheerfulness, there is quite a bit of pain in that string.  And I praise God that Ava is free of all that pain and knows no more pokes or tests in her heavenly home.

Revelation 21:4  He will wipe away every tear from their eyes, and death shall be no more, neither shall there be mourning, nor crying, nor pain anymore, for the former things have passed away.”

Praise God, what a hope we have.

Amen