Ava Day

I’m pleased to say we had a really nice Ava Day.  And to put everyone’s mind at rest, we didn’t spend the day in sadness…  I honestly didn’t miss her more on Wednesday than I already do.  We just wanted this day to be about celebrating Ava’s life and to make it a  little special for our kids and that’s what we did.

In the morning I had a visit from my special sweethearts – Aleeda and Britton… along with their mother Tanya as well of course.. haha.    Sarah was supposed to go to school but wanted to stay at home to see them, and when I saw her playing with the girls,  I knew I was never going to tear her away to send her back to school.    She loves them so much and in a way they are her surrogate little sister’s, so I’m glad she was able to spend them with them.  Aleeda and Britton are getting so big!

DSC_0703 DSC_0713

Tanya and I had a nice visit too.  It’s still kinda seems weird hanging out with Tanya and the girls in our homes, especially after spending so much time together in Sick Kids waiting for hearts.   We used to sit outside the girls rooms in the hall of ward 4D and pretend it was our front porch.   The nurses would come by to chat and we had so many good times – it made the hard days bearable.    And it would be awesome if the nurses could still just drop by from time to time  to join Tanya and I, but I know they have work to do. 🙂   The nurses did make our Ava day extra special by sending me a whole envelope of paper birdy’s they cut out… we were so touched and the kids put them up all over the house to decorate for Ava day.

DSC_0694

The eyes are courtesy of Sarah – I think she drew them on each one, and there were lots.

We actually have a house full of Christmas birdies right now… I love it.

DSC_0700

And this birdy ornament…

DSC_0699

Oh so fitting, God does surround us by His grace.

My cousin emailed me and told me that whenever she sees a Christmas bird decoration she thinks of us and Ava…and I liked that.  I see bird’s now wherever I go and I don’t  remembering ever seeing them before.     We also received this special little bird from some friends…

DSC_0732

So sweet.   But it’s not only that these bird’s remind me of my own little Birdy – for us they are a symbol of God’s faithfulness.   A reminder that during such a difficult time,  He never once left us on our own, and gave us the grace and strength we needed every day.   And so now when we see birds, we remember.

OK – so I didn’t think we were going to go to Ava’s grave on Wednesday because by the time Jason would get home from work we would be visiting a cold and dark graveyard… not a chance.   But then Jason thought we could pick the kids up for lunch at school and go during their lunch-break, so that’s what we did.  We grabbed some food and headed out there, and we brought some things to decorate the Birdy rain-meter that I marked her grave with (cuz we haven’t picked a stone yet).

DSC_0722

The combination of decorations isn’t strictly beautiful, but it’s the thought that counts. 🙂

We corralled the kids for a photo…

DSC_0726

And then headed back.  And on the way home William said to us… “So, I hate to say it, but this was pretty boring.”   Oh dear… and what a riot.   Sorry William, I just couldn’t make visiting your sister’s grave on her birthday more interesting, but I guess next year I will try harder.   🙂

We wound up the day with cake and pizza and more friends and all in all it was a really nice Ava day.    I don’t have to say that it would have been 100 times better if we were actually celebrating a birthday with Ava, but I imagine that’s understood.

But I always have to keep coming back to where she is, rather than where she isn’t.    She’s fully alive in heaven…  my baby no longer, but a new creature who is fully aware of the glory of God.   In a place where there is no pain or sadness or death.  Praise God, she is more alive than we are.

Revelation 21:4

4 “He will wipe away every tear from their eyes, and death shall be no more, neither shall there be mourning, nor crying, nor pain anymore, for the former things have passed away.”

So see… we do have something to celebrate on this Ava day, she is in an amazing place and we will see her again!!

Amen!

Advertisements

512 Nights…

Last Saturday I got this text from my friend Tanya, Aleeda’s mom….  “512 nights at Ronald MacDonald and now we are all home!”    It just blew me away that it had been that long that they had lived in Toronto,  and seeing those numbers was a bit shocking.   Our family was only away for 6 months and that felt like forever, so times that by 3 and then you can see how Tanya would say that coming home really isn’t coming back to “normal”… it’s kinda like coming back to a completely new life again.    And even though Tanya and Brian’s journey has been far from easy… far far far from easy… I love seeing how their faith in God has given them incredible strength to face all the challenges and hurdles of having a  baby with hypo-plastic left heart who needed a heart transplant, and how through it all they have stayed sane and stayed positive.

Now the journey is still far from over.  Aleeda is still being fed through her g-tube and is on quite a few meds, so she and her baby sister are going to keep Tanya very busy, but I know that God chose wisely when He gave Aleeda to Tanya and Brian and I hope that someday Tanya finds a way to share her story for everyone.

The girls and  I actually went and saw them today – we are so fortunate that home for them is only 40 minutes from here… hurrah!  Sarah had said that she just wanted to see Aleeda smile and she got her wish…

20131115_143553 (1)

Doesn’t Aleeda look amazing?    Sarah also spent alot of time holding the baby like she had been doing it all her life…

20131115_144853

But to be honest, seeing pictures of Sarah holding babies kinda makes Jay and I sad.  There are so many pictures of Sarah holding Ava and we just wish that it was still Ava that she was holding… sigh.

While we are on the topic of Sarah… Jason and I attended a class last week to learn more about using an Insulin pump as a method to control diabetes.  We learned more about how the pump works and they also talked about how we can begin to start the process to get Sarah pumping if that is something we want to do.   Here is a handy dandy illustration of what a pump looks like…

isulin pump

Basically the pump is a little digital device that you wear on your belt, which pumps insulin through tubing that is attached to you.   Having a pump would be great for Sarah because it would allow her to eat what she wants when she wants, just like the rest of us.   But the downside of that is that you are kinda married to the pump in the way that it’s always there… it never leaves your side, literally. 🙂

Right now we manage Sarah by giving her injections of insulin, which is restricting because she has to eat at scheduled times and has to stick to a strict set amount of carbohydrates for each meal – but in between snacks and meals we don’t really have to think about her diabetes.    So I guess it’s one of those things where you have to weigh the pros and cons and figure out what works the best for you and your family.   I’m fairly certain that just because of the flexibility we will be perusing the pump, but that means now we have to figure out which pump to get!   So if anyone has any suggestion for us, we’ll take them!

Other than that, it’s just business as usual around here.  I am pleased to report that with some help from my friend Rachel,  I finally manged to tackle the room in our basement that held a lot of our belonging we had brought home from Toronto.   I thought I couldn’t sort it all because some of the stuff was Ava’s and I was pretty sure it would make me sad.  As it turns out it didn’t make me sad, and I realize now it wasn’t Ava’s stuff that was bothering me, it was just the mess and chaos that was bothering me!   I do feel like I am close to whipping this house back into shape and getting things all organized so that it can be functional for us.  But it’s taken a long time because life is busy here with 4 children plus diabetes.

Today is actually 3 months since Ava died.  Three months already.  And then in a few weeks it would have been Ava’s first birthday…. December 4…. Ava Day. 🙂   We haven’t quite figured out how we want to celebrate it, other than the kids want to decorate our house with birds and probably eat cake.  But I hope that as part of ‘Ava Day’ we can find a way to reach out to other families who are struggling with a baby in the hospital.   We will see what happens and I will keep you posted.

And we just wanted to thank people once again for your continued prayers and support.  Even after three months we still miss Ava like crazy, but are truly thankful to be home and I think Tanya would say the same thing, especially after 512 nights away.