A day that ended well

It’s such a relief that this day ended well because it started out kinda crazy!    When I got to the hosptial this morning I was informed that during the night Ava’s heart-rate and respitory rate had risen and they got a little worried.   Then when they changed her diaper, they found blood in her urine… Ava!!

So they did some blood work and tested her urine and then because she’s still coughing, they repeated the nasal swab that we had done Wednesday and she got another chest x-ray… those horrible chest x-rays that baby’s get that make them cry and cry.    So basically she got a full work-over.

And just in case she was coming down with a new virus, we got moved out of the step-down room that we were in, to a single room right across the hall for droplet contamiation.    So we spent a nice quiet restful day in there while Ava slept and slept.

I had them check the results of the swab early afternoon and it came back clear, no new viruses!   Her chest x-ray was also clear and there was no more blood in her urine.      Her blood-work had shown that her white blood cell counts and nutrophils  were up a bit, and her urine did show a touch of bacteria, but since Ava woke up from her long nap happy and comfortable  and didn’t have a fever, they didn’t start her on antibiotics and they lifted the contact restrictions and moved us back into the shared step-down room to make her care easier for the nurses on tonight.

So I’m happy to say that things seem to be good with our sweet little Birdy now – praise God.

But please pray for aanother sweet little girl that I’ve met while I’ve been here – little Bella is 3 and isn’t doing very well tonight.  It’s really hard to see another family struggle, especially as Bella also is single ventricle like Ava.

For us, I’m just praising God for a good day for our family, even though we aren’t together and I’m so thankful to Him that this day has ended well.

Spoke too soon…

Well I know that I just posted that Ava was doing well in my last post, but apparently I spoke to soon.  The next morning after that post – yesterday morning – Ava woke up with a hacking cough.. oh no!   And then I noticed that it looked like Ava was trembling while she was sleeping, and sure enough she was breathing much faster than her norm and seemed to be working a bit harder to breathe  as well which didn’t make me happy.

So to be on the safe side I called her pediatrician and made an appointment to take her in that afternoon, but just to make sure I called our Single Ventricle nurse at Sick Kids to see what she thought, and she said that rather than take Ava to the dr, she should go to emerg.  So I packed up everything, and Jason drove us to the hospital.

And they were really good to us.   On one hand  – with Ava being who she is they don’t want to take any chances, but on the other hand, she wasn’t presenting that bad – not like the kid next to us with a terrible case of croup.  That’s the thing –  here I take Ava who I don’t want to get sick,   to hang out with the sickest kids in the city!  But thankfully we were in the isolation room so I kept that door closed.

They ordered a chest x-ray for her to see if anything was brewing in her chest – but thankfully her lungs are clear.  And her oxygen saturation levels are normal, so no pneumonia or anything at this point, which is fantastic.   And since she had just had an echo on Friday they knew she wasn’t in heart failure.   So after telling me that if any little thing changed with her or if I was concerned again to come right back, they let us go home.

But I have to admit that the cough does scare me.   Mostly because it takes so much out of her to cough and after a bad bout of coughing she typically breaks into a cold sweat.   So it’s stressing her out, and I just don’t want her stressed because that is definitely not good for her heart.   We want her to stay healthy so she will be in good shape for her heart catheterization which is only 2 weeks away!

So we pray.    And trust that God will be faithful yet again.  I love how verses come to mind in moments like this and this time it’s from Colossians… chapter 1…

1He is the image of the invisible God, the firstborn of all creation. 16 For by him all things were created, in heaven and on earth, visible and invisible, whether thrones ordominions or rulers or authorities—all things were created through him and for him. 17 Andhe is before all things, and in him all things hold together.

God holds all things together – isn’t that the coolest thing?  I love being reminded of that, and I love the image of the univerise  breaking apart if God withdrew His hand.     So this God who is so big and so able,  can certianly hold together my little baby’s heart.   And I can go to sleep tonight in peace trusting Him to do so.

Amen.