Back a few months ago, my friend Lisa told me that they were going to participate in Dream Fund’s event ‘Wings for an Angel’ and she asked if it would be OK if they released a butterfly in Ava’s name. Of course I agreed and was honoured that they thought of our sweet little Birdy.
And I’m even more honoured because Lisa is a mom to another little heart warrior Jake who was born 4 months after Ava (we met at SickKids of course). Jake has been through a ton, but is doing well and is at home with his big sister Georgia and I know that Lisa has her hands full – and that they took time to do this for others just makes me smile.
You can read about the butterfly release and see pictures here… Living Whole Heartedly with Only Half a Heart
And yes, reading about it made me cry a little, but only because we miss Ava, and seeing the pictures of the other babies that were lost make my heart ache for their families. But through it all, even though I miss my daughter, I know that God’s ways are higher than mine and I can cling to the hope I have for eternity.
7 “Can you find out the deep things of God?
Can you find out the limit of the Almighty?
8 It is higher than heaven—what can you do?
Deeper than Sheol—what can you know?
9 Its measure is longer than the earth
and broader than the sea.’
Ava Samantha Grace Colley
December 4, 2012 – August 15, 2013
We love you so much our sweet little Birdy, and can’t wait to see you again in heaven some day.
Love mom & dad, Erik, William, Sarah & Sophia
Psalm 73:26 My flesh and my heart may fail,
but God is the strength of my heart and my portion forever.
Ava’s Life Slideshow (change the quality for better pictures)
When rounds came by this morning I certainly wasn’t expecting to hear that they are doing Ava’s catheterization tomorrow and hopefully here Glenn surgery next week!!!! But that’s what they said and its wonderful news. But now Jason and I are in a bit of shock and I’m getting a little nervous. I mean it’s all well and good to wish for something but now that I know Ava’s going to have surgery again… well I’m going to try not to worry.
Now we need to arrange for Jason to come to Toronto and figure out what to do with the kids and everything, so it’s going to be busy, but I know it will all work out.
So sorry this won’t be a long post, I just wanted to send an update. Ava is doing OK, but definitely not 100% and I’m so grateful that there are no plans to send her home, but that they really want to fix her now. With her heart function down and the fact that she is growing out of her shunt, there is no way for her to get better now without surgery and so I’m just glad that it’s going to happen sooner rather than later.
So please keep Ava in your prayers and hopefully we get some good results from her cath tomorrow!!